Skip to main content

Having a Child with Cerebral Palsy


July 9th, 2018. This date will always be burned into my mind. This is the day my son, at 10 months old, was diagnosed with Cerebral Palsy.

I was at work at the time when I got the call. I excused myself and went into a conference room to speak to the doctor privately. He was calling with the MRI results. As he said those 2 words, my legs got weak. I willed myself not to cry, not here at work in front of my employees and my peers. I excused myself and stumbled out to my car, driving the short distance back to my house.

When I pulled into the drive, my husband came out to greet me. I was home early so he know something was wrong. He looked at me for a moment and then said "He has Cerebral Palsy". It wasn't even a question, my face gave it away. I couldn't hold it in anymore and I burst into tears.

The months that followed were a whirlwind. I researched more then I had ever researched anything before. I read book after book. I reached out to family and friends, grasping for something to "heal" my baby.

I was shocked at the lack of information and resources out there. I spent a crazy amount of time trying to learn more about ways to help him. Not just the traditional Physical Therapy and Occupational Therapy they suggest. Alternative things.

That's when I decided to write it all down, maybe help out another family who is learning to adjust to this information.

My son is currently 13 months old. He can sit up, but he doesn't crawl, pull himself up, or walk. I am continously doing research and trying new things with him, and I will write about each thing I try, including the results I may have seen. While I can't promise that I will write consistently, I can promise that they will be complete honest posts that share my struggles, victorys, and what I have learned along the way.

As a last note, if you have any suggestions or comments about what has helped you or your loved one with Cerebral Palsy, please leave it in the comments below. I would love to hear about it!

Comments

Popular posts from this blog

Vibration Therapy for Cerebral Palsy

Today I look Landon to his first vibration therapy appointment. My husband got to go along, and I know he was skeptical, but I think the appointment turned him around. I did a lot of research and made a lot of phone calls before I found a place to take Landon. Most of the physical therapy places required that we do a complete plan. We didn't want to do this, as we already had a physical therapist that we liked and that Landon seemed to like too. We ended up going to a chiropractors office. The chiropractor had my husband and I each get on the machine first to experience what he would. It was the strangest feeling and I'm not sure how to even describe it. It's like standing on a huge box fan without the air flow. The next step was putting Landon on the machine. He can stand while he hold his hands, so that is what we decided to do for the machine. He loved it! After it was turned on, he stood up super straight and started smiling. The second time he tried to take a ...

Booked Hotel for ABM Therapy Trip

Tonight I booked our hotel rooms for our 2nd trip to have the ABM (Anat Baniel Method) therapy done with Landon. I am beyond excited! We took Landon to his first ABM therapy lessons almost a month ago. We go for 3 days, and he has 2 lessons each day. Unforunately, the closetest person who does this therapy is 4.5 hours away, so we have to get a hotel room for the 3 days. During the first trip, he learned how to roll over from his back to his front very smoothly. We were so excited to see this, as we were beginning to wonder if we were ever going to be able to movivate him to roll to his belly. On the last day, he was on all 4s (with her help getting there) and rocked back and forth and side to side. It was great! Due to all of the progress we felt he made, I have been so anxious to get back for the 2nd time. We are going Oct 6-8, since I have Monday off work for a holiday (the perks of working at a bank!). The only downfall of it all is that insurance does not cover this ...